10-08-2011, 08:43 PM
I've been sick with an extremely rare condition for a long time now, and my doctors have had no idea how long I've have, I spent a month in ICU when I was 23, another 6 months in bed and in an out of hospitals for 6 months.
They were amazed I lived the first three days. Now I've survived for several years. I'm 27, and now the crap is really starting to hit the fan. In the last month and a half I haven't been able to eat properly (I've lost close to 50 lbs). I'm showing some symptoms of kidney failure from some of the meds keeping me alive.
By now I've pushed all my friends and family out of my life, at first I couldn't stand the thought of letting my friends see me like that, but I never explained anything to them, but by now its been too long, and we would have nothing in common. I have some friends, but none that I see regularly.
I'm alone and I don't see that changing
How long can I keep smiling and answering I'm fine thanks, how are you? They don't mean it when they ask, but that question is haunting me.
They were amazed I lived the first three days. Now I've survived for several years. I'm 27, and now the crap is really starting to hit the fan. In the last month and a half I haven't been able to eat properly (I've lost close to 50 lbs). I'm showing some symptoms of kidney failure from some of the meds keeping me alive.
By now I've pushed all my friends and family out of my life, at first I couldn't stand the thought of letting my friends see me like that, but I never explained anything to them, but by now its been too long, and we would have nothing in common. I have some friends, but none that I see regularly.
I'm alone and I don't see that changing
How long can I keep smiling and answering I'm fine thanks, how are you? They don't mean it when they ask, but that question is haunting me.